Any adult can benefit from the peace-of-mind that can result from planning for a possible time when they are no longer able to direct their own medical care. This is especially true for people who have been diagnosed with a life-threatening or terminal illness and for people in their senior years.
Doing medical advance care pre-planning can ensure your wishes are followed and alleviate stress for family members and prevent unnecessary family suffering and conflict.
Physicians and other health care professionals also benefit from knowing that they are acting in accordance with your wishes.
In British Columbia, the Representation Agreement Act, which came into effect in 2000, is a mechanism by which adults can name a Representative to make decisions for them, if, by reason of injury or disease, they are no longer able to make their own decisions. The person (or persons) designated can make legal, financial, personal care and medical decisions.
If there is no Representation Agreement, the Health Care Consent Act names the next-of-kin as a substitute decision maker for people who are not able to give or withhold consent to medical treatment. This legislation also states that decisions made by the substitute decision maker have to be in accordance with the person’s expressed wishes and instructions.
In situations where conflict between various family members is possible, or if your next-of-kin does not share your values and beliefs, it is more crucial that you do the necessary pre-planning to address your needs.
It is important for people to consider what treatments they might or might not want under various medical situations should they not be able to direct their own care.
Such instructions are known as advance care planning (click on “Your Care” on Fraser Health website)– you are making medical choices in advance that only have relevance while you are still living. To address this issue, gather information, consider the options and discuss your thoughts with your family physician, your family or others close to you.
In British Columbia, Do Not Resuscitate orders (DNRs) are a type of advance directive indicating that you do not want cardiopulmonary resuscitation to be done if you stop breathing or if your heart stops beating. People who have a terminal illness or are at the natural end of their life can make this request. This should be done after discussions with your doctor as the form needs to be signed by your doctor. It is important to remember that this document applies only to cardiopulmonary resuscitation and not other types of treatment.
Although BC Legislation says that your wishes, whether verbal or written, must be followed, you have much better protection if your wishes are written. It is also important for all the people close to you and your doctor(s) to know that you have written an advance directive and for them to have a copy or know how to find it. Your wishes can only be followed if people know them. Do NOT put your advance directive in a safety deposit box as it may not be accessible when it is needed.
If you make a Representation Agreement, you may have your advance medical directive as part of the Agreement or as a separate document you would attach to it.
It is also important to remember that these documents are a form of “insurance” and may never come into effect. If you remain able to direct your own affairs and give or withhold consent to medical treatment, they will never have to be used. Having them in place, however, provides you, your family or loved ones with peace-of-mind should the need ever arise.